Ethos Ministries

To Whom It May Concern,

We are the Doyle family from Henderson, NV.  We have 3 children, 1 of whom has become very ill.  Her name is Mercy, and she is 6-years-old.  She was born healthy, and thrived for the first 2 years of her life.  After she turned 2, she contracted the Epstein Barr virus (aka mononucleosis).   Tragically, the virus went into her brain and began attacking it.  Even after the virus was gone, she was not herself again.  Multiple MRI scans showed that the virus caused permanent brain damage.  Since this time, she has progressively gotten worse.  She now has permanent ataxia throughout her body, a constant left foot tremor which makes it virtually impossible for her to walk, along with regularly occurring seizures to name a few. 

In March of 2011, Mercy was finally diagnosed with OMS (Opsoclonus Myoclonus Syndrome).  It is a very rare neurological disease affecting only 1 in 10 million children a year.  However, in November of 2011, we were told by her specialist that her exact case is unlike any they have ever seen before.  She is the only one in the world with all of her symptoms.  So really, she is 1 in 7 billion.  With that said, the team of doctors caring for her haven’t been able to find a treatment that is successful.   Mercy has undergone 2 rounds of different chemotherapies among other treatments with no success.  Her body continues to deteriorate before our eyes despite all of our efforts.  We have exhausted much of our own resources and physical energy fighting for our daughter’s precious life. 

Currently, we are trying to raise funds for a program that will aim to balance the 2 hemispheres of Mercy’s brain through various physical, occupational and academic therapies.  Unfortunately, our insurance company will not cover this $6,000.00 12-week therapy.   Last year, we were able to host a fundraiser through Chipotle, which raised enough monies to pay for all of our travels to and from California for medical appointments with Mercy’s specialists, hospital visits and a surgery.  In May of this year, we will be hosting another fundraiser through Color Me Mine to offset a portion of the cost of this brain balance therapy program.  We continue to look for ways to pay for all of the medical expenses that come our way.  We won’t stop fighting for our daughter’s life no matter what the cost.  A desperate parent cannot put a price tag on the health and life of their child.  Please consider supporting us as we attempt to be our daughter’s voice and find a cure.  Mercy means the world to us, and we will not give up fighting and praying for a miracle!

Sincerely,

Kevin and Camie Doyle

For the most current updates and photos of Mercy, go to www.prayformercy.org